Footprints 4 Sam

Remembering Sam

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Footprints-4-Sam
Footprints-4-SamHost

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By host - Footprints-4-Sam
In honour of Sam’s life, a charitable Trust, Footprints4Sam has been established. With the aim of ensuring that the highest standard and corporate governance is applied to preserve the legacy of Samuel John Frederick Platt, the Trust focuses on ensuring that no child or family will have to endure the challenges that Sam faced. Emphasis is placed on both advocacy as well as tangible initiatives that support families of children facing life-limiting diseases.
To learn more about the amazing work of the Trust go to:
https://www.facebook.com/Footprints4Sam-141251726332880/
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Footprints-4-Sam
Footprints-4-Sam followed this discussion
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The Footprints 4 Sam Trust was launched to build a legacy for our son, Samuel who passed away having spent his entire life in ICU (Fifteen and half months), having never come home and having never gone outside to play. The goal of our Trust is to offer hope, change, dignity, connectedness and support to underprivileged children who have chronic illnesses. (These are illnesses that are either life limiting or life threatening - These include many rare conditions. Sam had a rare muscle myopathy called Central Core Disease).
4 mths
zoe-bailey followed this discussion
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Thank you for sharing, Sam’s legacy will live on forever.
4 mths
Host
This is such a heart-breaking story, my goodness.
4 mths
10 more people followed this discussion
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My Shayne was 17 years old. He was smart, funny, loving, silly, courageous, and perfect in my eyes. I have not dealt well with my child leaving this world. I am still hurt. I feel cheated. I feel he was cheated.
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4 mths
arafakhan-mamon, shht-bll, koop and 7 other people started following this discussion
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Nobody can tell another how to cope after the loss of a child; they can only share their own experiences. And tell you that there is a future, perhaps not the future you imagined, but a future nonetheless.
4 mths
10 more people followed this discussion
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Nobody can tell another how to cope after the loss of a child; they can only share their own experiences. And tell you that there is a future, perhaps not the future you imagined, but a future nonetheless.
For me, the initial coping was simply existence. Day to day existence. Trying to sleep. Trying to eat. Trying to function. A grim existence. Everything was grey
4 mths
matt-knox, anna-jameson, isah.saleh and 7 other people started following this discussion
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As a parent, I think one of the worst things I could ever imagine is going through what you two went through. After all the numerous misdiagnoses, was there ever a time when you blamed the medical professionals that were attending to Sam? Did you ever feel they could’ve done something to save him?
4 mths
Host
As a parent, I think one of the worst things I could ever imagine is going through what you two went through. After all the numerous misdiagnoses, was there ever a time when you blamed the medical professionals that were attending to Sam? Did you ever feel they could’ve done something to save him?
I think the disproportionate relationship that one has with the medical profession, or professionals, especially when you get to a point where the trust relationship is damaged – where there’s very little empathy. You start to feel as though your child is just ... there. Like he’s just Patient X in Bed Y, and very little attention is paid to the emotions, the feelings and the challenges you go through as a parent.
4 mths
Host
I think the disproportionate relationship that one has with the medical profession, or professionals, especially when you get to a point where the trust relationship is damaged – where there’s very little empathy. You start to feel as though your child is just ... there. Like he’s just Patient X in Bed Y, and very little attention is paid to the emotions, the feelings and the challenges you go through as a parent.
I’m sure the medical practitioners have to learn not to get too attached to their patients. It’s challenging, but imagine if they became emotionally invested in all their patients, it would be a terrible life to live because some things are just out of their control as well.
4 mths
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I’m sure the medical practitioners have to learn not to get too attached to their patients. It’s challenging, but imagine if they became emotionally invested in all their patients, it would be a terrible life to live because some things are just out of their control as well.
That is true, but they should be emotionally involved - like empathizing with patient, providing relief and decreasing suffering.
4 mths
Host
Doctors and nurses may get emotionally attached to their patients, but it is not good for their professional lives
4 mths